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The powerful story of Frankie Sheridan-Hill, aged seven, featured on ITV

  • Writer: Dr Dan Williams
    Dr Dan Williams
  • Nov 2, 2022
  • 1 min read

The powerful story of Frankie Sheridan-Hill, aged seven, who has H-ABC – a severe form of TUBB4a leukodystrophy – was featured by ITV News in November.

 

Young Frankie and mum Amy opened up about his diagnosis, the daily challenges he faces and our work to develop a treatment.

 

Frankie also told journalist Daniel Henry and his team his favourite team was Arsenal and his favourite player was Bakayo Saka.

 

As a result, an Arsenal employee saw the interview and contacted Amy to donate Saka-signed football goodies to Frankie.

 

ENDS




Frankie Sheridan-Hill and mum Amy
Frankie Sheridan-Hill and mum Amy

 
 
 

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