The powerful story of Frankie Sheridan-Hill, aged seven, who has H-ABC – a severe form of TUBB4a leukodystrophy – was featured by ITV News in November.
Young Frankie and mum Amy opened up about his diagnosis, the daily challenges he faces and our work to develop a treatment.
Frankie also told journalist Daniel Henry and his team his favourite team was Arsenal and his favourite player was Bakayo Saka.
As a result, an Arsenal employee saw the interview and contacted Amy to donate Saka-signed football goodies to Frankie.
ENDS
