The powerful story of Frankie Sheridan-Hill, aged seven, featured on ITV
- Steve Kelly
- Nov 2, 2022
- 1 min read
The powerful story of Frankie Sheridan-Hill, aged seven, who has H-ABC – a severe form of TUBB4a leukodystrophy – was featured by ITV News in November.
Young Frankie and mum Amy opened up about his diagnosis, the daily challenges he faces and our work to develop a treatment.
Frankie also told journalist Daniel Henry and his team his favourite team was Arsenal and his favourite player was Bakayo Saka.
As a result, an Arsenal employee saw the interview and contacted Amy to donate Saka-signed football goodies to Frankie.
ENDS
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